Maddox Jones (left) with his girlfriend, Pam. (Photo courtesy of Maddox Jones)
For most transgender people, starting hormone therapy requires a therapist's approval.
As the recipient of a new heart, Maddox Jones also needed his transplant team's OK.
"It was a long and difficult process, because they weren't necessarily educated, nor do I think they had trans patients before," he said. "I feel very grateful for them and the care they've provided."
As a newborn, then called Madeline, Maddox had regular seizures. That was the first sign something was wrong. At a year old, he was diagnosed with a thickening of the heart muscle called hypertrophic cardiomyopathy, which can lead to heart failure.
"We were told he had maybe a year to live," said his mother, Gina Jones. "The initial diagnosis was a gut punch, but we knew the cardiologist and felt confident they knew what they were doing."
About six months later, surgeons replaced a defective mitral valve, implanted a pacemaker and performed a procedure that shaved a portion of the thickened heart muscle,
"I was in and out of the hospital, but my parents tried to get me the most normal life without limitations," said Maddox, who lives in Wimauma, Florida. "Back then, I don't think I realized how difficult it was to grow up sick. It was just life."
In fourth grade, the battery died on his pacemaker. He found out how much weaker and more fatigued he felt without it. "It was like night and day."
In high school, Maddox's health took a turn for the worse. As a sophomore, he had a stroke, resulting in garbled speech, disorientation and weakness on his left side. While his symptoms resolved within hours, he spent two weeks in the hospital for monitoring.
Finally, as a 17-year-old junior, doctors told him his heart was failing; it was time to go on the heart transplant waiting list. Ten days later, he got his new heart.
Recovery was difficult. He had severe chest pain and numbness in his right leg. The anti-rejection meds caused gastrointestinal issues, mood swings and other side effects.
Soon enough, he appreciated the benefits of a functioning heart.
Before the transplant, he couldn't walk from the parking lot to the front door of his school without getting out of breath. Just getting out of bed had been difficult. Not anymore.
"I'm very grateful that I've received this heart, and now I get to live a full life with it," he said.
Growing up, Maddox always had a nagging feeling he was different – and not just because of his heart problems. Two years ago, at age 23, he realized he had never felt like a female and began transitioning.
Maddox Jones with his dog, George. (Photo courtesy of Maddox Jones)
Wearing men's clothing for the first time made Maddox so happy he tossed out his entire wardrobe.
"It was very exciting and freeing." Then he cut his hair short.
Since friends already called him Mad or Mads rather than Madeline, he selected Maddox as his new name.
"It's a pretty cool name, too, so that's a plus," he said.